• Understanding Autism from the Inside

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So My Kid Grew Out of Autism? Part III – My Concerns

My concern here is this—

I would rather the center say Yes, to his autism diagnosis and he get help—speech, OT, and whatever other services available and him be able to grow in leaps and bounds and be ready for school when the time comes, than they say No, and him get no services at all. You see what if we ARE wrong, well then his speech and social skills will just be improved through his services, BUT what if I am right? I have seen this happen with my oldest.

Aspie Teen was very social with adults at this age, his difficulties really began when he his 4K preschool. That is where is social interaction shut down, the demand outweighed his social capabilities and he spend all day under a desk, or hiding in a corner, or locked in the bathroom until we had to remove him from the school. For Aspie Teen things just continually went downhill from there—and he received no help! I fear this is where is this heading to, if we continue to find those who put ASD children inside of a little box, seeing them as all looking the same, and when they look slightly different they insist they don’t fit the bill.

Another issue here is that I was shocked at the findings. I have spent the past year getting used to the idea, researching and observing, and I am truly shocked at these “findings.” It has seriously rattled me, and I feel all the anger and frustration I did as a child. I was social; I was verbal; I appeared to blend it (sometimes), and yes, I could have days—even now—where you would not pick me out to be autistic. I suffered in silence, and had no help. I fear for my child.

Instead of joy at their “news” I feel panic, fear, anger, and unease. This worries me, and I am not sure what to do from here. I suppose I can take the wait and see approach, and then when his demands outweigh his capabilities have him evaluated again, but it concerns me that the evaluation takes place in one day, with a one-on-one adult in play-mode—this is the ideal situation for an ASD kid! Observations over time and in different social situations, I believe, are necessary least many of us get missed!

RECAP

Nine months ago, the Tot received two tentative autism diagnoses, and a severe repetitive expressive speech delay diagnosis. After an evaluation this past Friday it was found that he no longer meets the criteria for autism. Cause for concern?

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Jeannie Davide-Rivera

Jeannie is an award-winning author, the Answers.com Autism Category Expert, contributes to Autism Parenting Magazine, and the Thinking Person's Guide to Autism. She lives in New York with her husband and four sons, on the autism spectrum.